A Boy Named PHOENIX
Living with Pompe Disease
by Suzanne LeMehaute
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About the Book
Phoenix is a 7 year old boy living with a rare neuromuscular disorder called Pompe Disease. This is a story of strength, devotion and the importance of the human touch.
Features & Details
- Primary Category: Arts & Photography Books
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Project Option: Standard Portrait, 7.75×9.75 in, 20×25 cm
# of Pages: 64 - Publish Date: Jan 05, 2010
- Keywords Pompe disease, human touch, Pompe, family, compassion
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